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• Health InfoNet of Jefferson County - SUPPORT AND REFERRAL GROUPS FROM UNIVERSITY OF ALABAMA AT BIRMINGHAM (Added: 24-Aug-2002 Hits: 35 Rating: 0 ) Rate It

• International Association of Cystic Fibrosis Adults - A site for adults with cystic fibrosis (Added: 30-Jul-2002 Hits: 54 Rating: 0 ) Rate It

• International Cystic Fibrosis Support Group - This site gives some basic information on Cystic Fibrosis. It also includes a chat room and bulletin board for some one-on-one interaction between people who have Cystic Fibrosis and their families. This site also includes links to other CF related sites. (Added: 18-Apr-2002 Hits: 62 Rating: 0 ) Rate It

• Kids Touched by CF - KidsTouchedByCF is a moderated/restricted list for children with Cystic Fibrosis or for siblings of children with Cystic Fibrosis. The list is not open to adults, except for adult moderators. (Added: 14-Aug-2002 Hits: 54 Rating: 0 ) Rate It

• KidsHealth - News for parents on taking care of kids with CF (Added: 30-Jul-2002 Hits: 74 Rating: 0 ) Rate It

• National Human Genome Research Institute - Search engine: Online health resources (Added: 6-Aug-2002 Hits: 39 Rating: 0 ) Rate It

• Online Mendelian Inheritance in Man - This site is a database of human genes and genetic diseases. (Added: 18-Apr-2002 Hits: 46 Rating: 0 ) Rate It

• Parents Helping Parents - Parents working together to meet the needs of special needs children. (Added: 30-Jul-2002 Hits: 56 Rating: 0 ) Rate It

• Parents Helping Parents (California organization) - Parents of disabled children helping each other (California) (Added: 24-Aug-2002 Hits: 77 Rating: 0 ) Rate It

• PatchWorx - PatchWorx is a fun and secure on-line community that breaks down the barriers of isolation, offering a warm and friendly environment for children facing illness and disability. We welcome the children, their parents and siblings, to a place where they can share laughter and tears, stories, ideas, and learn from each other. (Added: 24-Aug-2002 Hits: 46 Rating: 10.00 ) Rate It

• Resources for breathing disorders - Links to websites with information on breathing disorders (Added: 23-Oct-2002 Hits: 35 Rating: 0 ) Rate It

• Second Wind Lung Transplant Association, Inc. - Provides support, love, advocacy, education and guidance. (Added: 14-Jun-2002 Hits: 38 Rating: 0 ) Rate It

• Second Wind Support Groups (national) - Support groups for lung transplant patients (Added: 31-Jul-2002 Hits: 60 Rating: 0 ) Rate It

• SupportPath.com - Premier directory for support-related online communities & message boards, chats, organizations and information on over 300 health, personal, and relationship topics. (Added: 5-Aug-2002 Hits: 44 Rating: 0 ) Rate It

• Taking Cystic Fibrosis to School - by Cynthia S. Henry, Tom Dineen, and Kim Gosselin (Added: 7-Aug-2002 Hits: 73 Rating: 0 ) Rate It

• The Compassionate Friends - The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive. (Added: 14-Aug-2002 Hits: 45 Rating: 0 ) Rate It

• The Oley Foundation - Helping people whose daily survival depends on home intravenous or tube-fed nutrition. (Added: 30-Jul-2002 Hits: 31 Rating: 0 ) Rate It

• University of Colorado Adult CF Center - The University of Colorado Adult Cystic Fibrosis Center at National Jewish is dedicated to providing specialized care and preventive services for individuatls (adults and adolescents) with Cystic Fibrosis. (Added: 17-Sep-2002 Hits: 33 Rating: 0 ) Rate It

• Well Spouse Foundation - This site addresses issues important to spouses of the chronically ill. This site has a member registry and a support group. This site also contains a list of regional activities, as well as activities that are happening nationally. (Added: 18-Apr-2002 Hits: 90 Rating: 0 ) Rate It

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Pages Updated On: 27-Sep-2005 - 04:46:50
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The Cystic Fibrosis-Reaching Out Foundation is a non-profit Foundation under Section 501 (c) 3 of the Internal Revenue Code. Accordingly, the Foundation is not required to pay income taxes. Donors may deduct contributions to the Cystic Fibrosis-Reaching Out Foundation Inc, only to the extent that their contributions are gifts, with no consideration given.