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Top : Gene Therapy and Genetic Testing
CF Resources: Gene Therapy and Genetic Testing
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Links:
- Aetna InteliHealth Cystic Fibrosis Genetics Testing Guide
- The Cystic Fibrosis Genetics Testing Guide includes an interactive decision guide, a video and detailed information about genetics testing, results and options. All of the medical information is reviewed and validated by the Faculty of Harvard Medical School, so you know the information comes from a trusted source.
(Added: 26-Mar-2003 Hits: 66 Rating: 10.00 ) Rate It
- Directory of On-Line Genetic Support Groups
- Search Engine: Alphabetic index of genetic disorders with links to associations, support groups and disease-related resources. Hosted by the Mountain States Genetic Network (MoSt).
(Added: 6-Aug-2002 Hits: 57 Rating: 0 ) Rate It
- Engineering Viruses
- Is it possible to engineer viruses to perform specific tasks within a human host--that is, to create viruses that are beneficial rather than detrimental to human health? "Not only is it possible to engineer viruses to be beneficial, it is already being done." Such treatments are currently being tested for the treatment of emphysema and cystic fibrosis.
(Added: 12-Aug-2002 Hits: 72 Rating: 0 ) Rate It
- Gene Therapy
- Early trials encountered unforeseen complications. A new round of more sophisticated strategies may turn the tide.
(Added: 12-Aug-2002 Hits: 132 Rating: 0 ) Rate It
- Genetic and Rare Conditions Site
- Alphabetical index of genetic disorders with links to disease-related associations, support groups, foundations, online discussion groups and listservs. Hosted by the University of Kansas Medical Center.
(Added: 6-Aug-2002 Hits: 57 Rating: 0 ) Rate It
- Genetic Counseling Resources
- A searchable database of genetics counseling services. Search by location, name, institution, type of practice or specialty. Hosted by the National Society of Genetic Counselors.
(Added: 6-Aug-2002 Hits: 24 Rating: 0 ) Rate It
- Genetic Testing
- Genetic testing can show whether a person carries the common gene changes known to cause cystic fibrosis
(Added: 31-Jul-2002 Hits: 44 Rating: 0 ) Rate It
- Large-Scale Genetic Testing for Cystic Fibrosis
- Starting October, 2001, tens of thousands of Caucasian Americans began to be offered testing to see if they carry a gene mutation that causes cystic fibrosis even if no one in their family has the disease.It marks the first time gene tests are being offered to the general population in the United States. Until now, this carrier screening test has been recommended for only small groups of people who know they're at high risk for a particular inherited disease, such as an illness runs in the family.
Are we as a society ready for mainstream gene tests?
(Added: 6-Aug-2002 Hits: 29 Rating: 0 ) Rate It
- Learning About Cystic Fibrosis (National Human Genome Research Institute)
- Cystic Fibrosis: A Single Gene Disease: Mutations in a single gene - the Cystic Fibrosis Transmembrane Regulator (CFTR) gene - causes CF. The gene was discovered in 1989. Since then, more than 900 mutations of this single gene have been identified. In normal cells, the CFTR protein acts as a channel that allows cells to release chloride and other ions. But in people with CF, this protein is defective and the cells do not release the chloride.
(Added: 6-Aug-2002 Hits: 32 Rating: 0 ) Rate It
- NIH Panel Makes Recommendations for Genetic Testing for Cystic Fibrosis
- Technical article: April 17, 1997 -- An independent, non-government consensus panel convened by the National Institutes of Health (NIH) has recommended that testing for gene mutations that cause cystic fibrosis be offered as an option to all pregnant couples and those planning pregnancy.
(Added: 5-Aug-2002 Hits: 20 Rating: 0 ) Rate It
- Pseudomonas aeruginosa--genome project
- The complete sequence of the genome of P. aeruginosa strain PAO1 was determined in a collaboration among the Cystic Fibrosis Foundation, the University of Washington Genome Center and PathoGenesis Corporation. The largest bacterial genome sequenced to date when published, the 6.3-Mbp genome contains 5570 predicted genes on one chromosome. Genome annotation was carried out by PathoGenesis scientists and by scientists in the Pseudomonas aeruginosa Community Annotation Project (PseudoCAP). This work was published in Nature , Stover et al. 406:959-964 (2000).
(Added: 18-Sep-2002 Hits: 19 Rating: 0 ) Rate It
- Senate Testimony Regarding Gene Therapy
- Statement of Eric Kast, Adult with CF Before the Subcommittee on Public Health, Committee on Health, Education, Labor and Pensions
United States Senate
February 2, 2000
(Added: 7-Aug-2002 Hits: 25 Rating: 0 ) Rate It
Pages Updated On: 27-Sep-2005 - 04:46:50
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