Top : Legislation and Public Policy

CF Resources: Legislation and Public Policy

Home | Add a Site | What's New | Email Updates | Random Link | Search

Links:

• Biomedical Revitalization Resolution of 2001 (Introduced in House) - H. RES. 72 To express the sense of the House of Representatives that the Federal investment in biomedical research should be increased by $3,400,000,000 in fiscal year 2002. (Added: 17-Sep-2002 Hits: 72 Rating: 0 ) Rate It

• Child Advocacy: Phoenix Children's Hospital - Advocacy simply means to speak up, to plead the case of another, or to champion a cause. It is something that most of us do routinely on behalf of our families, our neighbors, our friends, and ourselves. It is a key part of our mission at Phoenix Children's Hospital to advocate on behalf of kids, making sure that their needs and concerns are heard when important decisions are made. (Added: 24-Aug-2002 Hits: 64 Rating: 9.00 ) Rate It

• Disability World - 2001: In preparation for the UN Special Session on Children, RI has reviewed current statistics, literature and international policy statements, and consulted with specialists in childhood disability. The following findings from these materials are sobering and underscore the urgency of raising the inclusion of children and youths with disabilities to a high priority in all proposed actions and programs to implement the Convention on the Rights of the Child. (Added: 24-Aug-2002 Hits: 80 Rating: 4.00 ) Rate It

• Legislative Action - The Public Policy Alliance (PPA) allows the CF community to be heard when issues such as quality health care, scientific research and funding health insurance, are brought before Congress. (Added: 31-Jul-2002 Hits: 70 Rating: 0 ) Rate It

• National Cystic Fibrosis Awareness Committee: legislative update 2002 - Thanks to the dedication and determination of many people, we were successful in establishing an official national awareness week for Cystic Fibrosis again in 2002. We, as CF patients, their family, friends, and caregivers aim to spread awareness of Cystic Fibrosis daily. No official recognition is needed to motivate us to help. However, we are so proud to have received official recognition from the United States Senate. Our voice was heard!! (Added: 17-Dec-2002 Hits: 76 Rating: 0 ) Rate It

• National Cystic Fibrosis Awareness Week - S. RES. 270 Designating the week of October 13, 2002, through October 19, 2002, as `National Cystic Fibrosis Awareness Week'. (Added: 17-Sep-2002 Hits: 59 Rating: 0 ) Rate It

• Physicians for a National Health Program - Physicians for a National Health Program is a not-for-profit organization of physicians, medical students, and other health care professionals that support a national health insurance (NHI) program. Specifically, we believe that a single-payer system (where the government finances health care, but keeps the delivery of health care to mostly private control) is the only solution to solving the United States' many health care problems. (Added: 17-Dec-2002 Hits: 66 Rating: 0 ) Rate It

• Rare Diseases Orphan Product Development Act of 2002 (Introduced in House) - The purpose of this Act is to increase the national investment in the development of diagnostics and treatments for patients with rare diseases and disorders. (Added: 17-Sep-2002 Hits: 72 Rating: 0 ) Rate It

• thomas.loc.gov - The federal government's primary search engine for legislation, from start to finish. (Added: 17-Sep-2002 Hits: 56 Rating: 0 ) Rate It

• U.S. Equal Employment Opportunity Commission - Information on disability law (Added: 16-Sep-2002 Hits: 109 Rating: 0 ) Rate It

• White House - Continuously updated report on status of federal position on issues that concern the community of chronically ill people (Added: 12-Aug-2002 Hits: 62 Rating: 0 ) Rate It

Pages Updated On: 27-Sep-2005 - 04:46:50
Links Engine 2.0 By: Gossamer Threads Inc.

The Cystic Fibrosis-Reaching Out Foundation is a non-profit Foundation under Section 501 (c) 3 of the Internal Revenue Code. Accordingly, the Foundation is not required to pay income taxes. Donors may deduct contributions to the Cystic Fibrosis-Reaching Out Foundation Inc, only to the extent that their contributions are gifts, with no consideration given.