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Top : Personal CF Sites and Stories : Personal Websites
CF Resources: Personal CF Sites and Stories : Personal Websites
Links:
- Becky's Home Page
- Mother of two children with CF looking for stories to include in an anthology about living with CF in the family
(Added: 31-Jul-2002 Hits: 143 Rating: 0 ) Rate It
- Chris Fowler Racing
- Chris Fowler, an
aspiring race car driver in Jacksonville, Fla., was diagnosed at six-months old with cystic fibrosis (CF).
(Added: 17-Aug-2004 Hits: 28 Rating: 0 ) Rate It
- CYSTIC FIBROSIS ZONE
- This page is dedicated to all of those out there that need to make light of their illness at least for a few minutes each day. Whenever I find an odd story, news article, research archive, or report that is just so wierd... they belong in the ~ MUCUS ZONE
(Added: 18-Dec-2002 Hits: 78 Rating: 0 ) Rate It
- Everything you need to know about CF
- Website that was created by a woman with cystic fibrosis to educate people about the disease. There are over 650 links concerning specific CF-related issues like common problems, new treatments, and other very helpful advice. This is definitely worth looking over if you want more practical information about cystic fibrosis
(Added: 16-Sep-2002 Hits: 77 Rating: 0 ) Rate It
- Genevieve's Cystic Fibrosis Website!!
- My name is Genevieve. I was born in 1975, and I have a disease called Cystic Fibrosis. In this website, I talk about my personal story with CF, and alternative therapies I have used besides antibiotics. I will constantly update this site with new topics, so please make sure you come back to visit.
(Added: 14-Aug-2002 Hits: 79 Rating: 10.00 ) Rate It
- Gianna Rose
- Site dedicated to informing people about Gia's fight against CF
(Added: 22-Oct-2003 Hits: 42 Rating: 0 ) Rate It
- If you ask James about Cystic Fibrosis
- Dedicated to current information about CF. Includes numerous resource links about: Treatment, Medication, Diagnosis, Research & Awareness, Kids & Parents, Nutrition, Complications, Support, Tributes,and more. Provided by James a 31 year old man with CF. Includes an Art gallery and personal experiences.
(Added: 13-May-2002 Hits: 66 Rating: 10.00 ) Rate It
- Julie Winters Homepage
- Stories from Julie's life as told by Julie herself; info on CF; links to other sites
(Added: 31-Jul-2002 Hits: 63 Rating: 0 ) Rate It
- My Sunshine
- A mother's memorial to her son.
(Added: 18-Dec-2002 Hits: 74 Rating: 0 ) Rate It
- Sarah Yourman
- "Medical miracle," adolescent living with both CF and CF-related diabetes
(Added: 21-Aug-2002 Hits: 70 Rating: 10.00 ) Rate It
- Telling Your Boss
- As people with CF are living longer, more and more people with CF are getting jobs. Like myself, I have had a job since my freshman year of high school. On your application, some may say: "Is there health condition that will affect your job performance that we should me know about?
(Added: 14-Aug-2002 Hits: 27 Rating: 0 ) Rate It
- Telling Your Coach
- This one is the easiest. It's like telling your teacher. When you join an athletic team you have to fill out a health card. Right away they ask for diseases or conditions. I've never told any of my coaches, they've asked me. They've always came and asked "you have a lung disease and you're running?" They are always really cool about it.
(Added: 14-Aug-2002 Hits: 25 Rating: 0 ) Rate It
- Telling Your Teachers
- For those who get sick often and require hospitalizations, telling your teachers is a key to keep up with you studies. People have different approaches in telling their teachers. Some people have the CF center social worker or nurse call the school and talk to the teachers. Some may have their doctors call the school. But most talk to their teachers one-on-one. Telling your teacher can be rough, but remember that having CF is nothing to be ashamed about and they aren't going to "lower your grade" because you have a disease.
(Added: 14-Aug-2002 Hits: 24 Rating: 0 ) Rate It
- The Silver Family Web Site
- At this site you can read poetry, see cute pictures of our daughter, learn about cystic fibrosis, and get to know our family.
(Added: 31-Jul-2002 Hits: 47 Rating: 0 ) Rate It
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Pages Updated On: 27-Sep-2005 - 04:46:50
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The Cystic Fibrosis-Reaching Out Foundation is a non-profit Foundation under Section 501 (c) 3 of the Internal Revenue Code. Accordingly, the Foundation is not required to pay income taxes. Donors may deduct contributions to the Cystic Fibrosis-Reaching Out Foundation Inc, only to the extent that their contributions are gifts, with no consideration given.
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